Archived posting to the Leica Users Group, 2012/12/21
[Author Prev] [Author Next] [Thread Prev] [Thread Next] [Author Index] [Topic Index] [Home] [Search]Thanks Ric, as a self employed person I was more worried about possibly being out of action for months than the GBS! john ________________________________________ happy the G-B took a quick course! ric On Dec 21, 2012, at 3:00 PM, John McMaster <john at mcmaster.co.nz> wrote: > Don't exist, I failed to make the full year due to illness, I was too weak > to push the buttons on my iPod never mind hold any imaging device! > > Tuesday 4th Dec - all normal > Wednesday 5th - wake up with double vision (no other symptoms), go to A+E, > CT scan see neuro and sent home with suspected nerve/muscle issue in left > eye. > Thursday 6th - wake up with normalish vision but wobbly legs, weak hands > and not very good coordination. Off to A+E again where I see the same > doctors. Given a lumbar puncture by the neuro team who think I have > Miller-Fisher Syndrome. Kept in (short stay unit) to see how I go, by late > afternoon I am far worse with arms shaking like bad Parkinsons so they > start my IViG treatment. > Friday 7th - wake up with my arms/hands effectively paralysed and legs not > much better, off for an MRI scan. Diagnoses changed to standard > Guillain-Barre Syndrome (GBS), my autoimmune system attacking my nerve > covering (myelin sheath) causing problems with nerves and the muscles. > Moved to HDU part of neuro. > Over the weekend my breathing gets shallower, GBS affects the diaphragm > muscles, so I am moved to ICU where I can get intubated quicker if > required. Thankfully not required so after a couple of nights back to > normal neuro ward. > Since then I have been recovering at a very rapid pace; most people take > 1-3 weeks to get the symptoms then another 1-3 weeks with no change before > and open-ended recovery time (can be months). I have only been about two > weeks from symptoms to being able to walk again! Expect to make a full > recovery and unlikely to re-occur :-) > > I have heard of two costs for the IViG treatment, the lower one would buy > a new M with 2 or 3 lenses and the higher one would be two bodies plus 4 > lenses.......Didn't cost me anything over my normal tax bill > > john - aged <50 >