Archived posting to the Leica Users Group, 2012/12/21

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Subject: [Leica] NZ PAW 49, 50, 51 and possibly 52
From: john at mcmaster.co.nz (John McMaster)
Date: Fri, 21 Dec 2012 22:08:02 +0000
References: <80F9701439F20347874CE5E4E03C22E99CCAC235@WHIZZMAIL02.whizz.org>, <CA+yJO1AmZouN3X+dS7oYWnu+ThCQCocbj_1CN3dhsy5yqQbnMw@mail.gmail.com>

Thanks Tina, it is quite surprising how quick!

john
________________________________________


Scary!  So glad it wasn't worse.  It's amazing how quickly we can become
totally disabled!

Tina

On Fri, Dec 21, 2012 at 3:00 PM, John McMaster <john at mcmaster.co.nz> 
wrote:

> Don't exist, I failed to make the full year due to illness, I was too weak
> to push the buttons on my iPod never mind hold any imaging device!
>
> Tuesday 4th Dec - all normal
> Wednesday 5th - wake up with double vision (no other symptoms), go to A+E,
> CT scan see neuro and sent home with suspected nerve/muscle issue in left
> eye.
> Thursday 6th - wake up with normalish vision but wobbly legs, weak hands
> and not very good coordination. Off to A+E again where I see the same
> doctors. Given a lumbar puncture by the neuro team who think I have
> Miller-Fisher Syndrome. Kept in (short stay unit) to see how I go, by late
> afternoon I am far worse with arms shaking like bad Parkinsons so they
> start my IViG treatment.
> Friday 7th - wake up with my arms/hands effectively paralysed and legs not
> much better, off for an MRI scan. Diagnoses changed to standard
> Guillain-Barre Syndrome (GBS), my autoimmune system attacking my nerve
> covering (myelin sheath) causing problems with nerves and the muscles.
> Moved to HDU part of neuro.
> Over the weekend my breathing gets shallower, GBS affects the diaphragm
> muscles, so I am moved to ICU where I can get intubated quicker if
> required. Thankfully not required so after a couple of nights back to
> normal neuro ward.
> Since then I have been recovering at a very rapid pace; most people take
> 1-3 weeks to get the symptoms then another 1-3 weeks with no change before
> and open-ended recovery time (can be months). I have only been about two
> weeks from symptoms to being able to walk again! Expect to make a full
> recovery and unlikely to re-occur :-)
>
> I have heard of two costs for the IViG treatment, the lower one would buy
> a new M with 2 or 3 lenses and the higher one would be two bodies plus 4
> lenses.......Didn't cost me anything over my normal tax bill
>
> john - aged <50
>
> _


In reply to: Message from john at mcmaster.co.nz (John McMaster) ([Leica] NZ PAW 49, 50, 51 and possibly 52)
Message from images at comporium.net (Tina Manley) ([Leica] NZ PAW 49, 50, 51 and possibly 52)